Supporting people with Down syndrome to have a say in the formation of policy

New and existing policies and practice should consider people with Down syndrome and their families

The group comprises people from a wide range of other charities and support groups: all with the common aim of ensuring that the voice of people with Down syndrome is heard in society and reflected in government policy.

Below are the groups who are supporting us and some of their members are represented within the NDSPG but we would love to hear from others.

NDSPG supports people with Down syndrome to have a say in the formation of policy in matters that impact their lives

The group comprises people from a wide range of other charities and support groups: all with the common aim of ensuring that the voice of people with Down syndrome is heard in society and reflected in government policy.

Below are the groups currently represented but we would love to hear from others.

What we do

Ensure that policy and practice considers people with Down syndrome and their families

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OUR WORK

Supporting people with Down syndrome

We aim to address all issues that impact the lives of people with Down syndrome. The main areas we have identified for action are listed below. If you would like to get involved in any of these work streams, please get in touch.

Our current focus has been to ensure the successful passage of the Down Syndrome Bill into legislation.  We’re thrilled that the announcement of Royal Assent was given on 28th April 2022, so we now have the Down Syndrome Act 2022 in UK legislation.  We now need to focus on the Government’s consultation which will be used to form the basis of the guidance required by the Act.

Our Get Involved page can be used to identify which areas are of particular interest.

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Down Syndrome Bill

Please support the Down Syndrome Bill. Raise awareness with your MP by joining our campaign.

Testimonials
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FUNDRAISING

Provide financial support to the NDSPG

Although we are group of volunteers, we do require funding in order to:

Please get in touch if you would be willing to provide financial support to the NDSPG.

 

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read our latest posts
Our Blog
People with Down syndrome are still not getting into schools and doctors and people say hurtful things and move us along to be someone’s else…
By Professor Sue Buckley OBE Professor Buckley gives us her personal take on the DS Bill in this statement shared with permission. We are grateful…
By Caroline White The Down Syndrome Bill, despite undeniably being a massive step forward, despite getting unanimous backing in Parliament from ALL parties, despite being…
By Peter Brackett The calls with radio stations up and down the country were starting in earnest first thing in the morning.  There was the…
By Peter Brackett As with every parent, it will be a moment I never forget.  The image of my newly born son being handed to…
By Sarah Costerton I am Sarah and I live with my husband David and our three girls Hannah (11 years), Beth (8 years) and Jessie…
I was 12 weeks plus 3 days pregnant when I found out about sweet Dori’s diagnosis, although a shock, for me Dori’s existence was and…
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We answer all email and requests as they come in.