Advisory Group

Join our Advisory Group

Join our Advisory Group of adults with Down syndrome.

Through online meetings led by our founding officers Bethany, George, Heidi, James and me, we plan to

  • share information on the Down Syndrome Act and what we are doing to make it law

  • hear and record the opinions of those living with Down syndrome

  • facilitate discussions about issues important to participants and how to make change

We’ll be documenting and sharing what we learn as research reports, so that all our perspectives can shape policy. 

To register, first read the invitation letter, and then complete the Consent Form online.

All adults with Down syndrome are welcome, and can attend with or without a supporter. We recognise that group Zoom meetings are not an accessible means of participation for all people, and we can offer individualised meetings with anyone for whom these are not a suitable way to contribute. Get in touch to explore this with us.

More information is included in the documents linked below. If you have any further questions, contact our project leader at

View the promotional flyer to share [here].

View the invitation letter [here].

View the Consent Form (required to participate) [here].


national down syndrome

The NDSPG supports people with Down syndrome to have a say in the formation of policy in matters that impact their lives. 

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