Please get in touch if you would be willing to provide financial support to the NDSPG.
Supporting people with Down syndrome to have a say in the formation of policy
New and existing policies and practice should consider people with Down syndrome and their families
The group comprises people from a wide range of other charities and support groups: all with the common aim of ensuring that the voice of people with Down syndrome is heard in society and reflected in government policy.
Below are the groups who are supporting us and some of their members are represented within the NDSPG but we would love to hear from others.
NDSPG supports people with Down syndrome to have a say in the formation of policy in matters that impact their lives
The group comprises people from a wide range of other charities and support groups: all with the common aim of ensuring that the voice of people with Down syndrome is heard in society and reflected in government policy.
Below are the groups currently represented but we would love to hear from others.
What we do
Ensure that policy and practice considers people with Down syndrome and their families
Promote
Promote positive attitudes towards those with Down syndrome in all areas including maternity, healthcare, social care, education and employment, as well as the media and wider society.
Engage
Engage with the Government with a view to encouraging policy changes to benefit people with Down syndrome and to improve support in health, education, employment, housing and within the wider community.
Act
Act as Secreteriat to the All Party Parliamentary Group for Down Syndrome (APPG-DS) and provide administrative, financial and research support to the undertaking of that group.
Seek funding
Seek funding for research to improve morbidity and mortality across the lifespan of people with Down syndrome.
Work together
Work with government and health practitioners to achieve a pathway to support expectant women where baby has a confirmed diagnosis or high chance of being born with Down syndrome.
Raise profiles of issues
Nationally raise the profile of issues affecting people with Down syndrome, their families and carers.
OUR WORK
Supporting people with Down syndrome
We aim to address all issues that impact the lives of people with Down syndrome. The main areas we have identified for action are listed below. If you would like to get involved in any of these work streams, please get in touch.
Our current focus has been to ensure the successful passage of the Down Syndrome Bill into legislation. We’re thrilled that the announcement of Royal Assent was given on 28th April 2022, so we now have the Down Syndrome Act 2022 in UK legislation. We now need to focus on the Government’s consultation which will be used to form the basis of the guidance required by the Act.
Our Get Involved page can be used to identify which areas are of particular interest.
- Community and wellbeing
- Education
- Employment
- Healthcare and Research
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Maternity Care
Down Syndrome Bill
Ed provides an update on the guidance under the Down Syndrome Act
Testimonials
Curious about what people say about us & our services?
FUNDRAISING
Provide financial support to the NDSPG
Although we are group of volunteers, we do require funding in order to:
- pay for research
- buy in consulting expertise
- support the administration of the group and the APPG
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We answer all email and requests as they come in. If you have an urgent matter or would like to place an order please click the link below to give us a call.
We answer all email and requests as they come in.