National Down Syndrome Advisory Group Summit
Hello, I am Florence Garrett and I am the Chair for the National Advisory Group. This is my blog about the first ever Advisory Group summit for adults with Down…
Urgent Call for Action on Down Syndrome Act Guidance: Key Debate in Westminster
On March 19, 2025, a pivotal debate unfolded in Westminster Hall concerning the implementation of the Down Syndrome Act 2022. Enacted three years prior, this legislation mandates the creation of…
Emily visits number 10
“I really liked getting to visit Downing Street. I felt honoured to be asked. I like that people are listening to us about what is important to us. I want…
Claire’s trip to 10 Downing Street
My name is Claire-May Minett, 45 and I have a rare condition called Mosaic Down Syndrome. I was invited by the National Down Syndrome Policy Group to attend the celebrations…
Rula’s personal experience of giving evidence – Sept 2022
When my dad Jack and I walked out of St. Pancras train station, we hailed a taxi. It was only my third time in a black cab so I felt…
Heidi and the Down Syndrome Bill
People with Down syndrome are still not getting into schools and doctors and people say hurtful things and move us along to be someone’s else problem or they just leave…
Why I support the APPGDS and the Down Syndrome Bill
By Professor Sue Buckley OBE Professor Buckley gives us her personal take on the DS Bill in this statement shared with permission. We are grateful for her support and expertise…
‘Rise the tide and all boats will float’
By Caroline White The Down Syndrome Bill, despite undeniably being a massive step forward, despite getting unanimous backing in Parliament from ALL parties, despite being a piece of history, a…
‘A historic day’
By Peter Brackett The calls with radio stations up and down the country were starting in earnest first thing in the morning. There was the last-minute scrambling to get people…